• Our Mission

    Welcome to CTE Matters to Me.

    Our mission is to:

    • raise awareness of CTE - chronic traumatic encephalopathy - especially in New Zealand
    • raise awareness of the devastating and tragic consequences of misdiagnosing brain injury as a 'mental health' or 'psychiatric' issue
    • raise awareness of the need for medical education & training which includes the identification of brain injury and suspected CTE
    • collate links to information about treatment for people who have suspected CTE
    • provide mutual support, understanding and networking among people and families of those who have suspected CTE
    • present our hypothesis of 'The Pono and Tika Pattern' as distinct symptoms and markers of CTE, and invite feedback
    • develop a standard of care for people who have suspected CTE.

    Ange Murtha, at far right, in late 2011.

  • What is CTE?

    • Chronic Traumatic Encephalopathy is a progressive neurodegenerative disease.
    • It is caused by repetitive head impacts over time (not single incidents).
    • It cannot be definitively diagnosed while living, but symptoms can be recognized.
    • Symptoms typically appear 8-10 years after head impact exposure.

    CTE Risk Factors

    • Contact sports (rugby, boxing, football, hockey)
    • Military service with blast exposure
    • History of domestic violence
    • Multiple concussions or subconcussive impacts
    • Any pattern of repetitive head trauma

    Treatment for suspected CTE

    Suspected CTE needs treatment for brain injury, not for a 'mental health condition' or a 'psychiatric condition'.

    The need for medical education and training for suspected CTE and brain injuries generally

    New Zealand's present system of educating and training medical students is leading to tragedy for people with brain injuries, who are being misdiagnosed with 'mental health' issues.

    Imagine if there existed a curriculum for medical students which was anchored in the first principles of the domain of medicine, which included:

    • "First do no harm" - the first principle of the domain of medicine
    • a foundational knowledge of what brain injury IS in general terms, and the many different kinds of brain injuries, in specific terms.
    • how brain injury is not a 'mental health issue', in terms of causation and presentation, although in presentation there may be similarities
    • how to ask patients about their history of head knocks and concussion
    • the dangers of giving psychoactive compounds to patients with brain injuries, which includes reading the Medsafe data sheets for specific psychoative compounds, especially the contraindications for patients with brain injuries
    • research into which specific compounds can help people with brain injuries and suspected CTE, without inducing further harm
    • research into nutritional approaches of helping the body rebuild and recover
      research into the existing range of treatments for brain injuries, including anecdotal new methods of treatment
    • research into the possible consequences to individual patients and their families, of regarding a brain injury as a 'mental health issue'
    • using guided drama and role play to explore and experience the impact of not being believed about having a brain injury, and instead being misdiagnosed with a 'mental health issue'

    Systemic Issues

    Imagine if New Zealand had a health system which included nationwide 'Brain Injury Treatment and Support Units'. These would provide proper respite and treatment for people with brain injuries, instead of the drug-based approaches of 'mental health units'. The costs of establishing and running the proposed nationwide Brain Injury Treatment and Support units would be met in a variety of ways.

  • We Remember

    New Zealand Rugby Player and truthseeker, with confirmed CTE.

    23 July 1985 - 27 August 2025

    https://thespinoff.co.nz/sports/02-04-2026/rugby-player-shane-christie-had-chronic-traumatic-encephalopathy

  • Misdiagnosis and 'Mental Health'

    Put yourself in the shoes of someone who has had repeated head knocks through sport and knows their difficulties are due to those injuries. They seek help, but doctors dismiss their head trauma history and instead diagnose them with a 'mental health' condition like 'bipolar disorder'.

    This happens far too often. People with suspected CTE face a medical system that too often doesn't understand brain injury symptoms and reaches for a 'psychiatric' or a 'mental health' label instead — often the path of least resistance, rather than the result of careful thought.

    But it is worth stopping to ask why there should be any overlap at all between brain injury and 'mental health'. When you look closely, there are two quite different things going on — and the lazy 'mental health' label collapses both of them into one.

    1. The symptoms can be the brain injury itself.

    Paranoia, anger, mood swings, impulsivity, personality change — these are not separate psychiatric conditions sitting alongside a brain injury. They can be the injury. Damaged brain tissue produces them directly, in the same way a damaged knee produces a limp.

    Think of chest pain: it can come from a heart attack or from indigestion, and it can feel much the same either way — but no competent doctor treats all chest pain alike, because the cause is what matters, not the surface sensation. Paranoia and anger are no different. When they are produced by a brain injury, treating them as a psychiatric condition is like offering an antacid while it is the heart that is in trouble.

    2. The distress is a normal response — not a disorder.

    It would be perfectly normal to be distressed about having a brain injury. Yet that distress is routinely reframed as a 'mental health condition' in its own right — which means the more understandably upset a person is about being injured and disbelieved, the more 'symptoms' the system finds. Normal distress becomes the evidence. The reaction becomes the diagnosis.

    So, all too often, the symptoms of the injury are misread as mental illness, and the ordinary human distress about the injury is misread as mental illness too. Two different things, both ending in the same wrong place.

    A concept that treats a healthy response as a symptom, and then treats distress at being disbelieved as further symptoms, is not a well-ordered concept. There is something disordered in the idea of 'mental health' itself.

    "The worst thing about probable CTE to me is not the disease, it's not being believed." — Ange Murtha

    If this sounds like your experience, you're not alone. There are medical differences between CTE and psychiatric conditions, and you deserve proper evaluation, and proper treatment — by someone who really understands brain injury and who does not conflate it with 'mental health'.

    3. A submission

    Elisabeth (co-developer of this website with Ange) recently made a submission on the Ministry of Health's Draft Mental Health and Wellbeing Strategy 2026–2036. The second of her 5 key points is that 'the strategy does not name brain injury'.

    Concussion, repetitive head impact,chronic traumatic encephalopathy, and sub-concussive injury produce symptoms which may at first seem indistinguishable from many 'mental health' diagnoses. For example, a person with undiagnosed brain injury treated for depression for thirty years deteriorates while:

    • consuming hundreds of thousands of dollars in mental health services and
    • suffering in a way that cannot be made legible on a spreadhseet for a financial cost-benefit anaysis or a financial audit.

    The first bullet point will speak most loudly to government administrators and medical staff who are bound by legislation to make every decision and expenditure legible for a cost centre manager, who can only think and operate in terms of what is legible on a spreadsheet.

    The second bullet point will speak to the human beings whose lives are unspeakably affected by decision-making which can only legibilise the

    surface of humans, and is unable and in a sense 'not allowed' to see into the sovereign interior of people - which is the human soul.

    But, returning to the here and now- building a proper assessment pathway would be a one-time cost with a multi-decade return, not only financially but also in the sense of beginning to restore our country to true health in its fullest sense. Read the full submission here.

  • What is 'health'?

    That is the site of human suffering is something which the machinery of administration is literally unable to render; only another human being who also has a sovereign interior is able to relate to that kind of suffering.

    This raises questions about the impacts of legislation which forces a financial model for decision-making upon the domain of health.

    What is 'health' if it ignores the sovereign interiors of human beings and the suffering of those sovereign interiors?

    The domain of health never used to be ordered by commercial logic. The domain of health used to be understood as a 'common good', and it used to be (and still is, in many cases), an arm of the church, meaning that it was inherently supported financially - without any commercial logic - for the good of the whole civilisation.

    These are fundamental questions.

  • Shine a light on CTE

    Help Ange Heal — and Prove It's Possible for Others

    Ange is an all-round sportswoman from Hokitika on the West Coast. Like so many Kiwis, she grew up living the active outdoor life — rugby, skiing, snowboarding, mountain biking. She'd completed a horticulture diploma and was building a new career when, in 2011, after years of repeated head knocks since childhood, she had her first seizure just eight days after her last rugby game of the season.

    Instead of being treated for brain injury, Ange was misdiagnosed with a psychiatric condition. She was later forcibly detained in a psychiatric unit and drugged for something she does not have.

    For fourteen years, Ange kept saying: "This is from the head knocks. I have a brain injury."

    To this day, Ange has never received proper treatment for her brain injury. The last care she had was from a concussion team in 2016 — before the system shut her out.

    But Ange hasn't given up.

    Even while experiencing progressive decline, she has connected with the international CTE community and found purpose in helping others facing the same fight. Through 'CTE Matters To Me', Ange and Elisabeth are working to raise awareness, challenge the systems that failed her, and support others affected by brain injury.

    Now Ange wants to heal — not a miracle cure, but real, tangible improvement. And she wants to prove it's possible for others too.

    What is a Vielight?

    The Vielight Neuro Gamma 4 is the world's most researched brain photobiomodulation device. It delivers near-infrared light through the skull and nasal passage to reach deep brain structures, stimulating mitochondria at a cellular level to help damaged brain cells heal. It's backed by over 35 published clinical trials across conditions including traumatic brain injury, Alzheimer's, and cognitive decline.

    This isn't experimental wishful thinking — it's cutting-edge neuroscience, and it could be a game-changer for Ange.

    How You Can Help

    We're raising NZ$3,700 to cover the cost of the device, international shipping, customs duties, and platform fees.

    Every dollar brings Ange closer to healing — and helps prove that hope is real for everyone living with brain injury.

    As Ange says: "The only way through is together."

    👉 Donate now: https://givealittle.co.nz/cause/shine-a-light-on-cte-help-prove-theres-hope

    Update- we're 3/4 of the way there! Thank you very much to everyone who has made donations so far!!

    This is a Vielight Neuro Gamma 4. This is what we are fundraising for to help give Ange some relief.

    https://www.vielight.com/devices/vielight-neuro-gamma/

  • The Pono and Tika pattern

    In our conversations about brain injury and CTE, Ange and I have noticed a common pattern, which is that people with brain injuries often experience two things at once:

    1. enhanced moral clarity- i.e. seeing the truth and wondering why others can't see it too, which leads to intense frustration, and

    2. impaired and inhibited communication, which also leads to intense frustration.

    It seems to us that this combination of experiences leads to anger and grief (which is not the same as 'depression'). These issues are neurological, not psychological or 'psychiatric'.

    Does this match your experience? If so, we'd love to hear from you.

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